Time Isn't Flying

Once again a long day at Gundersen has begun, with an endoscopy about to be performed on my father. Like all things medical, preparation and paperwork take up hours before the main event. These days, I've come to believe this is more draining than the more dramatic events.

After the procedure is over, we'll have a much clearer picture of what needs to be done to get his stomach functioning correctly again. An update to this post will cover the results of the exploration.

UPDATE: While final results and analysis have yet to be given, the pictures indicate that the opening of the stomach into the small intestine is tiny. Once again it was impossible to pass through it for a deeper look, this time due to the opening being far too rigid to pass anything by. This would fit with the scar tissue theory.

Biopsy samples were taken for CMV culturing. Initial suggestion is a feeding tube inserted into the small intestine, but Dad wants to continue trying the full liquid diet. Hopefully more will be decided once all the data is in.

The last few days have been particularly hard due to the ongoing nutritional issues and growing difficulties with Dad's behavior. Irrational outbursts and fuzzy reasoning has made him a handful to deal with. I'm being run into the ground in the process.

Side effect of medication mixed with poor sleep and no real food is not a good combination. I suspect many a family member or caretaker have gone through this hidden cost of cancer. Severe illness affects far more people than just the one struck ill.

In the end, all you can do is endure and try to help. The hardest part is learning when the loved one is not fully in control of their faculties. They certainly aren't able to tell themselves, so conflict is guaranteed.

So much forgiveness is required. Patience will get exhausted eventually, so forget about relying on that exclusively to get through things.